Well we went to the doctor on Monday to get the results of the scans. All is good no other places seem to have the cancer. It hasn't spread. The dr is not sure how to continue at this point cause the cancer isn't following the same pattern it normally does. In fact she stated it was odd. So the new joke is Paula is an oddball that is the dr's diagnoses. Of course the dr never said that but well we can put a good spin on it. They are looking at two different types of treatment the first and most likely is an oral chemo pill that can break the blood brain barrier and the second is traditional chemo that may or may not break the the barrier. the dr is sending it up to the tumor board. The tumor baord is a group of dr's mostly the heads of each department including the research department and the discuss "odd" cases and what the best treatment will most likelyu be for it to respond. They were not sure when they would be able to get her file in front of the board but would do so as soon as possible.
While we have been waiting for the results we have had some serious ups and downs and have recieved more support than we probably deserve, but thank you to all. We also have been looking at alternate treatment programs which has been kind of weird to see some of these treatments. It is kind of nice to see what options are out there.
But for now we have awesome good news and feel like we can start back into semi-normal life.
Wednesday, February 24, 2010
Monday, February 8, 2010
New Developments
Well since a lot for information and what is going on and why I posted a few thigns the way I posted them. First off thank you to everybody who has been concerned and voiced it. i know many of you have thought but didn't want to ask which is just fine too, we have so many people I honestly don't remember everybody.
But to those who don't know Paula was having some pretty regularly migraines for a while a now and so in November they did a CT scan to see if anything was going on, nothing was found then but she still kept getting the headaches. One of the side effects of the chemo she was getting is migraines so they attributed to that since they couldn't see anything. Well about two weeks ago she was starting to get tingling in her fingers and toes again by themselves not a big deal because the treatments gave her neuropathy in her hands and feet. But then it started to spread to her lips and face. when that happened she called the dr's office and spoke with them and they stated that those were signs that the cancer could have may have spread. So on Jan 28 the gave her an MRI with the results not do back for 48 hrs. Yeah one day we will learn that when we get these scans done we need to do it on Monday or tuesday so we don't have to sit through the weekend waiting for results.
On Feb 1 Paula gets a phone call from the PA at her dr's office(the oconoligist is out on maternity leave) and tells her she has two tumors in her brain. It has been a full whirl wind since then. She went in for what we thought as consultation with the radation oncologist on Wednesday and we were expecting at the earliest to start was today(Today). No she went in and she was told you are starting tomorrow and well we go with it until we are done.
To say the least this has been another wakeup calll of what may happen, it has been hard to realize but the fact that this a very deadly deisase and that Paula has one of the most aggressive ones I realized there are some things out there that if something did happen, heaven forbid, the things we discussed this weekend is stuff I don't want to have to make without her.. So we discussed we needed to figure out where we wanted to be buried and we the tax returns back we decided it wouldn't hurt to just get them.
I hope no one takes it the wrong way but it is part of areality we aren't giving up and Paula has not been told she is going to die, we are just preparing. For those who would like to help my sisters have set up a website to help coordinate the days we may need something. here is the link http://www.lotsahelpinghands.com/c/622773/ this will be updated regularly by either us or my sisters.
But to those who don't know Paula was having some pretty regularly migraines for a while a now and so in November they did a CT scan to see if anything was going on, nothing was found then but she still kept getting the headaches. One of the side effects of the chemo she was getting is migraines so they attributed to that since they couldn't see anything. Well about two weeks ago she was starting to get tingling in her fingers and toes again by themselves not a big deal because the treatments gave her neuropathy in her hands and feet. But then it started to spread to her lips and face. when that happened she called the dr's office and spoke with them and they stated that those were signs that the cancer could have may have spread. So on Jan 28 the gave her an MRI with the results not do back for 48 hrs. Yeah one day we will learn that when we get these scans done we need to do it on Monday or tuesday so we don't have to sit through the weekend waiting for results.
On Feb 1 Paula gets a phone call from the PA at her dr's office(the oconoligist is out on maternity leave) and tells her she has two tumors in her brain. It has been a full whirl wind since then. She went in for what we thought as consultation with the radation oncologist on Wednesday and we were expecting at the earliest to start was today(Today). No she went in and she was told you are starting tomorrow and well we go with it until we are done.
To say the least this has been another wakeup calll of what may happen, it has been hard to realize but the fact that this a very deadly deisase and that Paula has one of the most aggressive ones I realized there are some things out there that if something did happen, heaven forbid, the things we discussed this weekend is stuff I don't want to have to make without her.. So we discussed we needed to figure out where we wanted to be buried and we the tax returns back we decided it wouldn't hurt to just get them.
I hope no one takes it the wrong way but it is part of areality we aren't giving up and Paula has not been told she is going to die, we are just preparing. For those who would like to help my sisters have set up a website to help coordinate the days we may need something. here is the link http://www.lotsahelpinghands.com/c/622773/ this will be updated regularly by either us or my sisters.
Subscribe to:
Posts (Atom)
