Complaint Session

Sorry folks this is going to be a big complaint session for me so if you don't want to hear it I stronglyh suggest that you stop reading now. That means now not in a few lines. THOSE who DON'T want TO hear THIS stop READING now.


I have began to wonder how much crap one family is meant to take. Our problems started years ago but really started to get bad when our youngest was born just over three years ago. She was born and had some serious breathing problems. So bad that for about 1-2 hrs she was given CPR until the NICU team from Primary Childrens could get there and put her on a ventilator, she was on that for 10 days and oxygen for about a month after that crashing once while on oxygen but also recovering real well. A couple months later my son was sitting in Paula's lap and jerked backwards towards her head we thought at first that he was playing until you could see him trembling and shaking and turning blue it lasted about a minute give or take it seemed like forever for us, this was just the start of another wonderful medical issue siezure disorder, they tried to get medicated but the siezures just kept getting worse as the days/weeks went by it got so bad that he was two to three gran maul siezures a day so his Dr decided to hospitalize him until he got stable. He was in Primary Childrens for 7 days try keeping a 3 year old boy who is otherwise healthy in the room with not a whole hell of a lot to do. I spent the majority of the time by his side. After they finally got him stablized on his medications he has not had a visible siezure since. We went about a year after that until I broke my collar bone no big deal out 6 weeks and can't play Turkey bowl anymore Paula's rules. Then we have had minor things with the kids no really big things for another year or so when Paula was diagnosed and we have been dealing with that since. We have found over the last three years that problems seem to come up as soon as a medical bill is paid off, so we have vowed to leave a penny on our balance just so no more crap can't come up, we have also noticed that something usually comes up as soon as our savings account starts to get up. That brings me to the current frustration we have 1k in savings and feeling good about stuff this is actual savings that isn't involved with taxes, those went to medical bills, so I was feeling pretty good. Then the van goes screw your savings cough cough good night and the transmission breaks. from several people I have talked to it sounds as though the clutch inside is gone. Repair costs anywhere from $1,300-2,600 yeah that is what I said the value of the car is only worth 2400 in mint condition trust me after four kids running through it and many many trips they have pretty well trashed the inside so I would guess it is worth 1500 if I am lucky so it makes it hard. Ohwell $2600 into it and we have a good vehicle back rather than owe 20k ya know. Well i think that the worse thing about this is the fact that all this comes after good news for Paula, i just wonder why can't we enjoy this excitement and joy? I have had someone tell me that we are so blessed and it was all I could do not to laugh cause that is the farthest thing I can think of, yes we have been blessed with family and freinds who are real supportive but to tell me right after my van is towed away and knowing I am looking at a pretty hefty bill to get it back they say it. My feelings right now are not of blessings but of utter and complete contempt how much crap can my family take, I am done this crap I don;t want my family to keep getting this crap brought on them. i no longer look forward tot he end of one road for fear of what is coming next. Let me deal with this problem and only this problem. Hopefully those of you who have made it through this session will understand and those who didn't well good for them. This is my little vent place sometimes and hopefully it doesn't affect you in a negative manner.

Good news

This week has brought good news. Paula went to the Doctor for a heart scan, Dr's follow up appt and another round of chemotherapy. Well the day started out ehh for her cause her scan didn't come out as good as it has but was still considered in the good range so they are going to watch it a little bit closer. She then went to see the Dr Werner an awesome cancer doctor at Huntsman and Dr Werner told us she was going to let up on the treatment because she is doing so well and that the treatment has been so successful. She said even though she is still considered a stage 4 she isn't going to treat her that way anymore. That is some of the best news we have had all year. So in celebration of this we are going to have a party when she is done(almost done) with chemo. Yeah happy days are here again. Just want to say thanks to everyone who has helped supported and prayed for her. WOud love to name everybody individually but there are way to many. Thank you all. And remember to do your self exams and tell your loved ones to you just never know.

vacation

We just got back from vacation in St George. Paula has a freind that had extra time on their time share so they put us up in a condo for 4 days 3 nights. On the way down we stopped at Cove Fort the kids had fun and seemed to learn a little bit. We got to St George and relaxed that night. We got up Friday morning and went to Zion National Park. The kids had a ball there, we went on several hikes. I think the kids really liked weeping rock and had fun there. We were going to go to The Emarald Pools but they don't let you swim in them anymore so we took the Narrows riverwalk and let the kids play in the water there they also got to play in the creek at weeping rock. They all did pretty good on these moderate and easy hikes. They really wanted to go to Angel's landing but well for obvious reason we didn't even start that one a few more years. We got back to the condo and went swimming. After Dinner we went downtown St George and went on a small tour of the Temple the kids seemed to be a little bored with that. On Saturday we planned to hit Zion again, but well we just weren't in the mood for it so we went around town went to the Wildlife museum. We were using the GPS to get around town and found that it is not the most accurate thing in the world our first real bad experience with it. It ended up taking us up and aroundtown instead of a direct route, I knew where the address was but thought hmm the GPS must know it is on this side of the hill, so I followed it, oh well we saw a part of St George that we hadn't seen before. After the little GPS detour we ate lunch and went to the Tabernacle for a little tour there. The Historic district downtown has a water play area with small creek that runs through it and fountains that spout so they can run through it, we didn't know that was there and so the kids got to play in it fully dressed they didn't care they had a blast and were soaked. We went back to the condo and went swimming. On the way home Sunday we went on the scenic way home and went through Zion tunnel, and then up highway 89 to i-70 and then home. Alot of awesome views going that route, the kids got to see a lot of fun stuff. On the way into Tooele I asked the kids what was the funnest thing on vacation they all said swimming. No more vacations for us we just have to take them swimming. I think Paula and I enjoyed this vacation cause we didn't stick ourselves to any time frame so we just had fun and didn't really care if we got everything done we wanted to. We just did what we wanted and had fun.